Vascular malformation/hemangioma

Hi, my baby was diagnosed with a vascular malformation and hemangioma and i am extremely worried about what the future looks like. Would appreciate advice from anyone who has gone through similar with their little ones; thank you! #Needadvice

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My friend’s baby had a hemangioma too and I remember how scary the diagnosis sounded at first 🥺 But many hemangiomas are actually manageable and some even shrink a lot over time, especially with proper monitoring. The important thing is: * regular follow-up with the specialist * monitoring if it’s growing quickly, bleeding, affecting breathing/feeding/vision, etc * asking clearly whether it’s a hemangioma, vascular malformation, or both, because management can differ A lot of babies go on to do completely fine. Try not to google too much because the severe cases are usually the ones posted online and it can make anxiety worse. One step at a time mama ❤️

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4t trước

Thank you Sabrina! Yes she has hemangioma and also a vascular malformation somewhere else so getting diagnosed with these 2 is really scary! Have been trying to find parents with similar concerns/some support group but none seems to exist!