Hazel Arnie Koizumi, Philippines

Hello Everyone, I am asking for your support and participation in this life-saving fansign campaign for baby Ryu. In this way, you can show your love and support to baby Ryu, while spreading awareness to every people about SMA. You can make a simple fan sign and take a picture yourself, your family, your boyfriend/girlfriend, or even with your pet! Please include these text below in your fansign: ZOLGENSMA FOR BABY RYU (and use the hashtags below) #BraveRyuKoizumi #FightSMA #CureSMAPhilippines Please include your city/country 🌷 Please share this with your family, friends, workmates, or neighbors, so that we can reach more people! You can post your pictures on your timeline and tag Ryu's Facebook page, or post it on the comment section below, or send it directly via messenger on our Facebook page. We will compile every pictures and will feature it on our Facebook page! Thank you so much for your support guys! We are forever thankful to everyone 🌷

Hi Everyone I'm back after how many months na nag uninstall ako ng app because of my son's condition. He's Ryu, my first baby, he's 6 months old, and diagnosed with a rare genetic disease called Spinal Muscular Atrophy Type 1. Unfortunately there's no treatment here in the Philippines, and the treatment called ZOLGENSMA, that he needs in order to survive(not cure) is worth $2.1 million dollars, mahigit 100 million pesos mga inay, and he may not reach 2 years of age without the treatment. He's now trach (butas sa leeg para doon huminga with the help of Ventilator) and g tube (butas sa tyan para dun na kumain). I'm just so proud of him, how brave and strong and always smiling he is despite of everything he went through, and I'm so heart broken and so sorry for him at the same time, because he don't deserve this, no child deserves this. I hope Ryu's story and journey will inspire others. And sa mga parents na may anak na may special needs, I salute to all of you! #firstbaby #1stimemom #baby #fightforRyu #cureSMA

Grabe from 110/70, 127/70 then 130/80 to 140/90 ang BP ko. Nag take na ako Methyldopa twice a day pero hindi bumaba 140/80 kanina pag check up. Wala naman akong nararamdaman, wala ding manas, severe headache or any symptoms na nafefeel. Gumawa na ng recommendation si OB na i induce labor na ako, para safe delivery. Lord please guide us. #firstbaby #pregnancy #1stimemom

Madaling araw hanggang 6:45am, hindi ko ma feel na gumagalaw si baby, I'm on my 36 weeks and 4 days na, kinakabahan na ako kasi usually naninipa at nanununtok talaga siya within that time kaya na praning na ako, kahit anong galaw galaw ko at kausap ko wala akong ma feel, hindi siya gumagalaw, naninigas lang talaga siya, hindi na ako nakatulog ng maayos, lalo na may mga nababasa akong experience ng mga still birth dito sa TAP and sa facebook, which is nakaka broken talaga ng puso, napaisip nalang ako pano kung mangyari sakin to, hindi ko yata kakayanin. Kinausap ko uli si baby at nag pray ako ng nag pray bigla nalang siya sumipa ng sobrang lakas, Thank you Lord! Sobrang tuwa ko akala ko kung ano nangyari kay baby huhuhu Lord guide us always po lalo na ang mga kagaya kong pregnant mommy at mga mommy na nawalan ng anak sana po i comfort niyo po sila always ❤ #firstbaby #1stimemom #pregnancy #theasianparentph