There is the Thalassaemia Society Singapore, which is run by volunteers who are all holding full-time jobs on the side, so response times can vary, some parents find them very supportive, but a few mentioned you may need to be patient if things move a bit slowly. My neighbour brought her child to one of their events at KKH and said it was genuinely helpful to meet other families going through the same thing, especially for the blood donation drives they organise which directly benefit the kids. It is a small but caring community, so do reach out to them, just go in with realistic expectations about capacity. That said, since every child's condition is different, it is really worth having a proper conversation with your child's haematologist at KKH or whichever specialist is managing the case, as they can also point you to the most appropriate support for your specific situation.