I really feel you on this, it must feel so overwhelming navigating this for your little one. I don't have personal experience with ARSA specifically, but I think the most important thing right now is to stay closely connected with your child's PD or the specialist team at KKH, as they will be the best ones to guide you on what follow-up checks are needed and how often. You might also want to ask if there is a patient support coordinator at the hospital who can walk you through the process, because sometimes just having someone explain the next steps clearly makes a big difference. Hang in there, you are already doing the right thing by asking and seeking support.