Alaah, sayang, ini memang berat jugak untuk hadapi. Honestly I don't have personal experience dengan Becker muscular dystrophy, tapi definitely kena check with paediatrician or neurologist yang handle genetic conditions, diorang boleh refer ke specialist support groups atau even genetic counselling services yang ada, especially if you're in KL or bigger states ada NGOs yang support rare diseases ni. A few of my mum friends yang ada children with genetic conditions say the hospital social worker is actually really helpful untuk connect dengan other parents going through the same thing, so takyah malu-malu to ask! Sending you strength, mama, this is a lot to navigate but you're not alone.
Nasheila Binti Abdul Gani