Hai sayang! Hmm, thalassemia HbE ni memang condition yang kena monitor closely, so I'd suggest you chat with your haematologist or paediatrician sebab they'll understand your specific situation best, setiap orang berbeza kan, depending on severity and management plan. I understand it's scary, especially kalau first time hearing about it, but ada banyak families managing it well nowadays with proper care. If you need emotional support, do reach out to thalassemia support groups dalam Malaysia, they're usually very helpful and boleh share real experiences from parents going through the same thing. Take care, and jangan rasa alone in this!